Biobank |
|
Subject |
Oral rinse, Blood |
Patient-reported outcome measures |
|
Subject |
Instrument |
|
Measured once: |
|
NQ_x101n |
Demographics |
Age and gender |
NQ_x103n |
Education and literacy |
Education and literacy |
NQ_x104n |
Country of birth and family |
Country of birth and family |
NQ_x105n |
Diseases |
Self-administered Comorbidity Questionnaire (SCQ) |
NQ_x112n |
Personality (big five) |
NEO Five Factor Inventory (NEO-FFI) |
NQ_x113n |
Locus of control |
Pearlin Schooler and Mastery Scale (PSMS) |
NQ_x115n |
Coping |
Utrecht Coping List (UCL) |
NQ_x116n |
Social Desirability |
Social desirability questionnaire (study-specific questionnaire) |
NQ_x127n |
Fertility |
Study-specific questionnaire (women only) |
|
|
|
|
Measured every time point: |
|
|
Questionnaire A |
|
NQ_x102n |
Weight |
Self-reported weight |
NQ_x106n |
Smoking and nicotine dependence |
Smoking habits (study-specific questionnaire) |
NQ_x107n |
Alcohol intake and dependence |
Alcohol (study-specific questionnaire) |
NQ_x108n |
Drugs use |
Drugs (study-specific questionnaire) |
NQ_x109n |
Generic quality of life |
EuroQol (EQ-5D + VAS) |
NQ_x110n |
Disease-specific quality of life |
EORTC QLQ-C30 |
NQ_x117n |
Severity anxiety/depression |
Hospital Anxiety and Depression Scale (HADS) |
NQ_x118n |
Fatigue |
Multidimensional Fatigue Inventory (MFI) |
NQ_x128n |
Social support |
Social Support List – Interactions (SSL-I12) |
NQ_x129n |
Concerns about patient |
Caregiver Reaction Assessment (CRA) |
NQ_x130n |
Physical activity |
Physical Activity Scale for the Elderly (PASE) |
|
|
|
|
Questionnaire B |
|
NQ_x202n |
Participation |
Impact on Participation and Autonomy (IPA) |
NQ_x203n |
Self-perceived neurocognitive function |
Cognitive Failures Questionnaire (CFQ) |
NQ_x204n |
Self-efficacy |
Generalized Self-Efficacy Scale (GSE) |
NQ_x205n |
Sleep quality |
Pittsburgh Sleep Quality Index (PSQI) |
NQ_x206n |
Life events |
Brugha/List of Threatening Experiences |
NQ_x208n |
Loneliness |
Loneliness Scale (de Jong Gierveld) |
NQ_x209n |
Hearing |
Caron |
NQ_x210n |
Sexual functioning – men |
International Index of Erectile Function (IIEF) |
NQ_x211n |
Sexual functioning – women |
Female Sexual Function Index (FSFI) |
NQ_x213n |
Supportive care needs |
Supportive Care Needs Survey Partners and Caregivers (SCNS-P&C) cancer module (SCNS-HNC) |
NQ_x214n |
Leisure activities |
Study-specific questionnaire |