Table 1. Baseline characteristics of HNC patients and their informal caregivers
HNC patients (n = 739) |
Informal caregivers (n = 262) |
|
Mean age ± SD |
63.2 ± 9.7 |
58.8 ± 11.6 |
Sex, n (%) | ||
– Men |
549 (74%) |
70 (27%) |
– Women |
190 (26%) |
192 (73%) |
Education level, n (%)1 | ||
– Low |
279 (43%) |
82 (37%) |
– Middle |
171 (26%) |
63 (28%) |
– High |
198 (31%) |
78 (35%) |
Living situation, n (%)2 | ||
– Living alone |
163 (25%) |
8 (4%) |
– Living with partner (with or without children) |
451 (69%) |
205 (91%) |
– Other (e.g. living with children, living with parents or assisted living |
35 (5%) |
12 (5%) |
Tumor location, n (%) | ||
– Oral Cavity |
199 (27%) |
|
– Oropharynx |
262 (36%) |
|
– Hypopharynx |
52 (7%) |
|
– Larynx |
205 (28%) |
|
– Unknown primary |
21 (3%) |
|
Clinical disease Stage, n (%) | ||
– Stage 0/I3 |
163 (22%) |
|
– Stage II |
132 (18%) |
|
– Stage III |
127 (17%) |
|
– Stage IV |
317 (43%) |
|
Type of treatment, n (%)4 | ||
– Single treatment | ||
Surgery |
152 (21%) |
|
Radiotherapy |
241 (33%) |
|
– Combination treatment | ||
Chemoradiotherapy |
215 (29%) |
|
Surgery and radiotherapy |
106 (14%) |
|
Surgery and chemoradiotherapy |
23 (3%) |
|
Other5 |
1 (0.1%) |
|
WHO performance, n (%) | ||
– Able to carry out normal activity |
507 (69%) |
|
– Restricted in physically strenuous activity but ambulatory and able to carry out light work |
191 (26%) |
|
– Ambulatory and capable of all self-care but unable to carry out any work |
40 (5%) |
|
– Capable of only limited self-care |
1 (0.1%) |
|
– Completely disabled |
0 (0%) |
|
Comorbidity, n (%)6 | ||
– None |
204 (29%) |
|
– Mild |
264 (38%) |
|
– Moderate |
155 (22%) |
|
– Severe |
76 (11%) |
|
HPV-status (oropharynx cancer only), n (%)7 | ||
– Positive |
99 (43%) |
|
– Negative |
130 (57%) |
|
Baseline smoking status, n (%)8 | ||
– Daily smoker |
127 (22%) |
38 (17%) |
– Not a daily smoker |
445 (78%) |
187 (83%) |
Baseline alcohol consumption, n (%)9 | ||
– Excessive alcohol consumption |
129 (22%) |
25 (11%) |
– No excessive alcohol consumption |
445 (78%) |
200 (89%) |
Relation informal caregiver – patient, n (%)10 | ||
– Partner |
219 (84%) |
|
– Daughter/son |
31 (12%) |
|
– Other (i.e. sibling, friend, ex-partner) |
10 (4%) |